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Meeting Planned

A Meeting is planned to take place in the month of March of the Raredisease Fourm the meeting will be to set up the board and to plan our Press release and the way forward on policy

The Cavan Tommy Hoey Trust Sets Up New Group Raredisease-NI Forum This Will Be a Totally Northern Group Looking After Local Issues Around Rare Diseases

The Cavan Tommy Hoey Trust organisors of Rare Disease Day in Northern Ireland have set up a new group that will be called Raredisease Northern Ireland Forum.  It has been established to run and to organise Rare Disease Day, it will also set up a forum for patients and families and carers of people with rare diseases. It will  be a support network for patients and families and carers of people with rare diseases.

via raredisease-ni.org.uk

Raredeisease Northern Ireland

Check out this website I found at raredisease-ni.blogspot.com